Baby Payton NEEDS Spine Surgery

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Our daughter Payton Grace is going to the children's hospital at Boston. She was due November 23, 2016 but came 7 weeks early on October 7, 2016 at 4.5 lbs and spent 10 days in the NICU in Johnson City, TN children's hospital.

Baby Payton NEEDS Spine Surgery

We found out during pregnancy at 25 weeks she was diagnosed with a hemivertebra which is a rare congenital malformation of the spine which results in deformation of the spine, such as scoliosis, lordosis, or kyphosis in her T-10 and another spot in her spine which happens in 1 out of 1000 births and she has a 13th rib which is unusual and doctors have no idea why and she also has a sacral dimple which they are monitoring as well to make sure it's not to make sure it's not tethered to spine which would cause more complications. A hemivertebra occurs when only one half a a vertebrae develops in the spine. The result is a triangular, wedge-shaped vertebra, which leads to congenital scoliosis or other serious spinal conditions.

Physicians have limited options when it comes to treating hemivertebra, and those options occur early in life. After consulting with Drs from University of Tennessee we are going to the Children's Hospital in Boston for treatment since they are ranked #1 in the nation to straighten her spine to be normal healthy little girl. Well we talked to the top dr n the spine center and the director/professor of the spine institute at Boston said they deal with this which is rare but does happen and sometimes they don't even have to have surgery depending on the curve but our daughter will have to have surgery to place the rods in her back to straighten her spine out correctly starting when she gets a little older. They say it will be a long and costly process but they will do all they can to make sure one day she can be a lady Tennessee Vol.

I work as a Federal Law Enforcement Officer as a Federal Correctional Officer at FCI McDowell for the Bureau Of Prisons in West Va but currently residing in Tennessee.

My wife got fired for being pregnant and for having to go to all the specialists over the baby and is now having a hard time finding a job even though she has a BS in business and marketing.

We have to commute 15 hrs one way just to take to Boston and makes it difficult on one income and only 1 dependable vehicle to get back and forward which we are trying to get help for a dependable SUV as well from any charities but no luck so far.

Any funds raised and not used for medical expenses will be donated to children's charities like St. Jude's etc.
Please if there is anyway possible you can help.
Thank you

#BabyPaytonBlue

News stations did a story about our daughter
https://www.facebook.com/foxnashville/posts/10155081802357290

https://orangeandwhitereport.com/finding-inspiration-for-a-tiny-vol-fan-e071c691357d#.9687bft71

 

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